View from my bed post bone marrow sample while on Fentanyl. Mmmmmm. This photo obviously meant something to me while I was on drugs. I guess that's why it's called DOPE.
The one encouraging thing out of this whole week was meeting 28 year old Billy from Alaska. I saw this kid walking in and out of appointments on Tuesday. He was bald had that tint to his skin that tipped me off that he had been thru chemo and what not. I haven't really figured out how to roll up to someone at Cancer Care and throw out the "so what do you have?" But I was curious, cause this kid was young and he was one of the very few people walking thru that place with a smile on his face, after the fact. Later that day Lisa and I were in the elevator going to another appointment and I was holding the transplant Bible that they give you and he was in the elevator. He says, "you got a transplant coming up huh?" "Yup" "Well don't worry about it, I'm 30 days out of mine and I can tell you that going to all these appointments and classes are more painful than the chemo and transplant itself. Just keep a good attitude and you'll do fine." The elevator door opens up, we say "thank you" and walk out, then look at each other with tears running down both our faces. Totally blown away. Later in the week we run into him again and he tells us he had AML, which is Acute Myloid Leukemia, which is what my Myelofibrosis manifests into down the road if we don't handle business now. He had the 6 days of chemo, then transplant and the dude honestly looked amazing for being 30 days out.
Pretty hopeful and anxious to get rolling at this point.