Week 5

A pretty awesome week in the books.   Still got this itching thing going where I try and scratch my skin off to the bone, but it's not that bad in scheme of things.  During our Monday "team meeting" with my Doctor, PA and Nurse I was advised and told NOT to go to the cabin as I had just confessed to them how awesome it was to go feel normal for 16 hours.  To which they said that 60 minutes away from SCCA is too far.  Eh...I'm kinda not really backing that advice so as a grown man I told them thank you for the advice, but I will be going there, not a lot, but when I feel right and it's right, I'm there..  The risk is worth the reward to me.  And I really don't feel like a 18 hour stint at the cabin is a risk.  Sorry guys, but I follow your rules to a T, but this one's not really lining up.  You'd know if you had a cabin, kids, and the need to be out of the city and be by the mountain.  I also started to exercise this week as well.  Out of the last 7 days, I walked 6 of the days.  Anywhere from a mile to a mile and a half a day. 
This has been tough to fit in but my nutritionist said that I will only start to gain weight when I work my muscles.  So walking was the goal last week, going downstairs to the gym will be the goal this week.  I got a lot of lifting and eating to do to get this 160lb body back to 200lbs.  And lastly, I've been on average going into the Infusion clinic to get platelets and red blood cell transfusions 6+ times a week.   Last week I only had to go 4 times.  I had 3 days off, which was insane.  Hopefully this will lighten up my 7 day a week SCCA schedule and give me a day or two off a week.  We'll see.  Anyway, stoked on last week.  It was very encouraging.